October 2025

Banner image for the October 2025 issue of Monthly Council News from the Tennessee Council on Developmental Disabilities. The background shows soft white rays and water ripple patterns. The overall design evokes a summery, poolside feel. Text reads: June 2025 – Monthly Council News – The latest news from the Tennessee Council on Developmental Disabilities – TN.GOV/CDD

From Our Chief Strategy Officer

Dear readers,

Can you believe we’re already nearing the end of October? Before the month is truly out, we want to celebrate Disability Employment Awareness Month. It’s a great time to mark the progress Tennessee is making toward real work opportunities for people with intellectual and developmental disabilities (IDD).

In fact, if you haven’t seen it, this graph tells the story with a visual. 

Over the past 12 years, Tennessee has made real strides toward closing the employment gap between people with and without disabilities. Every percent that gap closes means many more people who have found work, a career path, greater independence, a place to contribute and maybe to belong. That is truly a reason to celebrate.

I also want to celebrate a milestone for our Council. Earlier this month, we launched a new class of Partners in PolicymakingÂź. Keep reading for photos and highlights from the weekend!

It’s such a joy for our staff to see a new Partners class come together for the first time. The bonding starts right away as people with IDD and family members hear each other’s stories and recognize their shared passion. They begin their learning with a deep dive into disability history. It’s hard content, but knowing where we came from forms a foundation for the months ahead. Through next April, the class will learn about where we are now with disability policy and services – and how they can help shape what’s next. Congratulations to this new group of Tennessee disability leaders on beginning their journey! And a huge thank you to staff members Blake Shearer, who directs our Partners program, and Dirk Strider, who provides on-site support. A great deal of work goes into making this experience so meaningful for each Partners class.

Keep reading for more info on what’s happening in disability in Tennessee. And reach out to us any time – we love hearing and learning from you.

Happy fall!

Jolene Sharp


National Disability Employment Awareness Month

2025 Expect Employment report released by the DDA

October is National Disability Employment Awareness Month (NDEAM). This is a time to spotlight the value people with disabilities bring to our state’s workforce. 

In honor of NDEAM, we wanted to share the Department of Disability and Aging's 2025 Expect Employment report. This report shows what state agencies and community partners are doing together to grow jobs for people with disabilities and older adults.  

One highlight: According to the report, more than 1,200 people now use Enabling Technology. This is an 80% increase since June 2024. 

Click here to read the 2025 Expect Employment report, and see what employment for those with disabilities currently looks like (and what it could look like!) across Tennessee.

Educate to Advocate

Learn how to speak up for better disability services 

Vanderbilt Kennedy Center and Tennessee Disability Pathfinder are hosting a free, virtual workshop on how to share your story and ideas with lawmakers and other leaders.

The event is co-hosted by Courtney Taylor of the Vanderbilt Kennedy Center and Megan Hart of Tennessee Disability Pathfinder. Emma Shouse Garton, Lillie Heigl, and Chloe Rothchild will all present different parts of what disability policy is, and what you can do to get involved.

When: Wednesday, November 5, 2025, from 5:30-6:30 p.m. Central Time

What You'll Learn:

  • How disability policy works in Tennessee
  • How disability policy works at the federal level
  • Why your voice matters when talking to lawmakers

Everyone is welcome. Whether you are a student, teacher, health care worker, person with a disability, family member, or just someone who cares – you can learn how to make a difference.

Educate to Advocate will stream live on Zoom. If you have a disability policy question, you will be able to ask it during the workshop.

Participants must register to get the Zoom link. Click Here to Register for the Educate to Advocate workshop.


Policy Corner: Council News to Know

Dear readers,

We know federal policy concerns are top of mind for many of you. Specifically, we’ve heard partner agencies and advocates asking questions about two things:

  • How will Tennesseans with disabilities and families be impacted by layoffs (“reductions in force”) in special education, civil rights, and vocational rehabilitation divisions at the U.S. Department of Education?
    • Our answer: Right now, we are not aware of any immediate impact to Tennesseans with disabilities and families in terms of available services or current funding levels because of these staff reductions. We’re monitoring the situation closely with state and federal disability partners. The federal Department of Education has not released any information about the changes. We know many are worried about longer-term funding, oversight, and enforcement of special education laws. This is an evolving situation, and we’ll share more when we know more. IDEA (Individuals with Disabilities Education Act) remains federal law.
News we’re reading

Finally – we’re working on a lot of issues related to the impact of law enforcement interactions and the criminal justice system on Tennesseans with developmental disabilities. If you have any stories to share with us, reach out anytime at tnddc@tn.gov – we always learn from you!

Thanks for reading! 

- Emma Garton, Policy Director



Disability Day on the Hill dates Announced

Make sure to mark your calendars and save the date!

Disability Day on the Hill (DDH) is when our state’s disability community comes together to share stories, support one another, and talk with lawmakers about what matters most. As long-time sponsors of Disability Day on the Hill, we hope you’ll join us.

Community Party

  • Tuesday, March 3, 2026
  • 5:00–7:00 p.m. Central Time
  • Adventure Science Center
  • Join for a fun, family-friendly evening to connect with others before DDH. Heavy appetizers will be served. This will be a free event.

Disability Day on the Hill — In Person

  • Wednesday, March 11, 2026
  • All day, statewide
  • You can celebrate DDH from anywhere in Tennessee! For the sixth year, landmarks across the state will shine Coalition Blue to honor disability advocates.

Disability Advocacy Day — Virtual 

  • Wednesday, March 11, 2026
  • All day, statewide
  • You can celebrate DDH from anywhere in Tennessee! For the sixth year, landmarks across the state will shine Coalition Blue to honor disability advocates.

How to participate:

  • We will share the RSVP link as soon as we can.
  • Please look for event details and registration at the start of next year.
  • All events are free, and food will be provided at the two in-person events.

Tennessee's Plan for Aging 

Tennessee is building a plan to make our state a better place to grow older, called the Multisector Plan for Aging (MPA). There are opportunities coming up to give input on the plan.
 

Tennessee's First Aging Conference 

Take The Survey 

If you are 65 or older and live in Tennessee, LifeLong Tennessee wants to hear from you.

Take the 10-minute survey to share your thoughts about aging in Tennessee. Your answers will help improve important services like:

  • Transportation
  • Housing
  • Health care
  • And other supports you need

Your survey is completely anonymous. No one will know your identity, and your answers are confidential. They won't be linked back to you in any way.

If you are a caregiver or work with older adults, you can contact jachovian.woods@tn.gov to share your input.

You can take the survey by clicking here.

Leadership Series: Carol Westlake and Sarah Sampson 

For more than 30 years, Carol Westlake has helped build a stronger disability community in Tennessee. As a founding director of the Tennessee Disability Coalition, she brought people together to create lasting change. Today, Sarah Sampson leads the Tennessee Disability Coalition, carrying that work forward.
 

Q: Looking back on your time in Tennessee's disability community, what stands out as the single most important milestone you witnessed or helped create?

Carol: On the state level, I would highlight the Family Support program. Legislation establishing the Family Support program was drafted by the Coalition’s task force, introduced and lobbied for by Coalition members, and eventually passed by state lawmakers. The program became the very first home and community-based service in Tennessee state law.  It was also the first program that was available across age, disability type, and familial status. Not only did that effort show families the power they had to make change, but it also provided some much-needed support to people with disabilities and their families.  

Sarah: In 2018 and 2019, all the pieces came together just right for the passage of law directing a new Medicaid waiver program known as the Katie Beckett Program, for kids with disabilities to access Medicaid. I had the privilege of working in a small way on this effort with many of the folks involved; getting to know families, testifying to educate lawmakers about the need for this program and how it might work, communicating with other members of the disability community and broader public about why this was needed and how they could move it forward.

It is a small program serving a small number, but for those who had access to no services, families who previously had the choice to divorce or file bankruptcy in order for their kids to access lifesaving care – this program is a game changer.

Q: Twenty years from now, what does success look like?

Carol: Years ago, an official at the Federal Office of Special Education said to me, “Every child should grow up able to engage in meaningful work and have the supports needed to fulfill their purpose, a place to live and the supports needed to live there, and a circle of family and friends in the community to share life with.”  Isn’t that what we all want?

Sarah: Normalcy. Universal design.

My twins have developmental delays and [just started] public kindergarten this August. I have two kiddos younger than them. The next 20 years look like their journey through Tennessee schools and then transition to adulthood, maybe postsecondary education, hopefully meaningful employment.

What are my hopes? That it’s not the uphill battle I’m preparing for. That the work I’m ready to put in to get them and their peers what they need means that all the kids coming up behind them have it better.

That adults with disabilities don’t have to be scared of aging because supports are baked in.

You'll be able to read Carol and Sarah's full interviews later this month. Click here to sign up to be notified when they go live. 

 

Partners in Policymaking Kicks Off 

Earlier this month, we launched this year’s Partners in Policymaking¼ cohort with our first in-person session. Our scholars got a chance to meet each other and Council staff in person, shared the “why” behind their advocacy journeys, and get a big picture view of what disability history and policy look like in our state. They also began planning advocacy projects they’ll work on with their fellow students.  

The class will continue their learning with self-paced content and monthly live sessions through next April. We look forward to seeing our Partners scholars develop further into strong advocates to improve the lives of those with disabilities in Tennessee!

Interested in becoming a Partners scholar? Watch this newsletter next spring for the announcement when applications open!

 
 

Council Meetings 2025

  • November 6-7, 2025 - Nashville Airport Embassy Suites hotel  

For more information and to RSVP for our meetings, please call our main Council phone line at (615) 532-6615 or email Assistant to the Executive Director, Ashley Edwards, at ashley.edwards@tn.gov.

Banner image for the August 2025 issue of Monthly Council News from the Tennessee Council on Developmental Disabilities. The background shows soft white rays and water ripple patterns. The overall design evokes a summery, poolside feel. Text reads: June 2025 – Monthly Council News – The latest news from the Tennessee Council on Developmental Disabilities – TN.GOV/CDD.lu