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Katie Beckett Program

What is the Katie Beckett Program?

Tennessee’s Katie Beckett program is for children under the age of 18 with disabilities or complex medical needs.  This program is for children who are not Medicaid eligible because of their parent’s income or assets.

This program will provide services and/or help pay for medical care that private insurance does not cover.

Tennessee’s Katie Beckett program has two parts.

Katie Beckett Part A

  • Will serve up to 300 children with the most significant disabilities or complex medical needs.
  • Children would receive full Medicaid benefits, which could include services like home health, private duty nursing, durable medical equipment and supplies, and occupational, physical and speech therapies, among other services.
  • Children in Part A would also receive up to $15,000 a year in home and community- based services.  These are non-medical services that help families care for children in their homes. Some of these services include respite, supportive home care, and home and vehicle modifications.

Katie Beckett Program Part B

  • Will serve up to 2,700 children with disabilities or complex medical needs.
  • Children in Part B will not be enrolled in Medicaid. They would receive up to $10,000 a year in services for their child.
  • Families will have the flexibility to choose any or all of the following services within their budget:  premium assistance, a health-care savings type account, reimbursement for  services that would benefit the child but can’t be covered under a health-care savings account, self-directed respite and supportive home care services, or an array of services from a community-based provider.

When Will the Program Start?

We expect the program will start in summer of 2020.  But we don’t know an exact date yet. That’s because a few things must happen before we can enroll people in the program. First, the state must have federal approval before it can start the program. It must also make sure both TennCare and DIDD have the systems and staff in place to take applications and enroll people into the program.  Both agencies are working very hard to make sure that is done as quickly as possible.

When and how can people sign up for the new program?

TennCare and DIDD have been collecting interest forms from people who are interested in applying for the program. This is not an official application for the program and does not put you “in line” for a spot.  But if we have an interest form from you, we will let you know when sign ups start and share other information about the program.

You can give your name and information to DIDD.  You can call your DIDD Regional Office at:

West Tennessee Regional Office:                (866) 372-5709
Middle Tennessee Regional Office:            (800) 654-4839
East Tennessee Regional Office:                  (888) 531-9876

Not everyone who signs up may qualify to enroll. We will enroll as many eligible children as program funding will cover.

What can I do to be ready?

First, make sure you have contacted the DIDD intake office in your region and let them know you are interested.

We will let you know when the program is about to begin and when you can sign up.

When we are ready to start sign-ups for the program, there will be a form online that you can fill out to apply.  If you don’t have a computer or smartphone to fill out the application online, you can call the DIDD intake office and they can help you fill out a form.  

Once you fill out an application, a DIDD case manager will contact you to help determine if you are eligible for the program.   They will also discuss with you the next steps and what happens if you may be eligible for Part A or Part B of the Katie Beckett Program.

Where can I find updates about the program?

To stay up to date on the Katie Beckett Program as we move forward, go to:

https://www.tn.gov/tenncare/long-term-services-supports/katie-beckett-waiver.html

OR https://www.tn.gov/didd/katie-beckett-waiver.

You can also follow the Department of Intellectual and Developmental Disabilities and TennCare on Facebook and Twitter.

Photo of young woman being pushed in a wheelchair down a sidewalk by her caregiver.